Just As Likely

My blood counts were once again too low for treatment today.  This is a little disconcerting, a little frustrating – but I understand that it’s not the end of the world.  This chemo is serious stuff and my body needs to recuperate a bit.

What was more than a little disconcerting was all the conjecture today about my back pain. When I told the nurses about it they said that maybe I’d cracked a rib, but reassured me that it didn’t mean anything, that this can happen to people who cough a lot.  However, I needed to be seen by a doctor and since my oncologist wasn’t there, I met with a resident.  I explained the whole pain-when-I-cough scenario and he, like the nurses, said it was likely a fractured rib. 

Here’s where it gets troublesome:  I asked if fracturing a rib was fairly normal with a serious cough or whether it means that the cancer has likely spread to my bones.  He didn’t even pause before saying “Yes, it’s likely that it has spread and I would expect your bone density is low.”

Okay, here’s a tip for all you up-and-coming oncologists out there:  your words are powerful – wield them with caution. You are not a mechanic, the patient is not the driver of a malfunctioning vehicle. You’re a doctor and this is my body, my life we’re talking about. If you are going to tell someone with metastasized disease that it may have further spread – in other words that the treatment isn’t working and things are getting worse – consider that this information might have emotional consequences.  Consider that it might freak the patient out a bit.  Don’t just throw it out there like you’re talking about a carburetor or a transmission that blew, because it’s not a car, it’s a human being and there are emotions attached to that carburetor; there are questions of mortality attached to that transmission.

Seriously. I was shocked. I immediately began processing the implications of yet another treatment not being able to stop this cancer. Tears started to pool in my eyes and I had to focus on breathing so that I wouldn’t suffocate from the g-force of fear pressing down on me.  The doctor began looking extremely confused and stressed out about my tears.  At the same time, my mother seemed to rise from her chair and materialize protectively at my side in far less time than it is humanly possible to cross a room.  Also, she had somehow procured a box of Kleenex enroute.

But then the voice of reason kicked in.  It said: Check out the look of horror on his face. Does this guy even know what he just said? So I dug deeper.

I asked what else could be causing the pain, whether it was possible that I haven’t cracked a rib at all, that I just pulled something?  He said it was just as likely.

Just. As. Likely.

A bruised rib or pulled muscle is not an indication of disease progression. I had to resist simultaneous urges to hug him and smack him in the head. I even managed not to shout What’s wrong with you? Why didn’t you say so in the first place?

The pools in my eyes began to evaporate and the weight of the air was suddenly more bearable.  In other words, fear left the room.  It didn’t leave the building – in fact it has maintained a respectful following distance all day – but at least it’s not sitting on my lap anymore.

Dr. Still a Little Inexperienced (Let’s call him Dr. SiLI for short) and I decided that an x-ray today would reveal either a fracture or potentially indicate other possible causes of the pain.  He would call me with the results.  Of course the CT scan on Tuesday will tell us much more, but I pointed out that waiting approximately ten days from now for those results would not be psychologically ideal for me.

Then Dr. SiLI examined me.  (Not a bad idea, since after all he’s a doctor and I’m a patient with a complaint of physical pain.)  He listened and tapped and prodded and poked around looking for the supposedly cracked rib, asking, “Is it here?  Here?” while I replied, “Um, I don’t know… maybe up a little…” and ultimately resorted to coughing in order to locate the pain.  Then, when he pressed it, I didn’t yelp or jolt my body away — in fact it felt kind of good, like a massage.  This I take to be a good sign, because the only time I ever officially fractured a bone you couldn’t even look at it too closely without causing me pain.

So Dr. SiLI gave me a ‘script for the pain & sent me for an x-ray, and then my mom and I left the hospital and did what any normal people would do after such a roller-coaster of a morning: we went to the movies.

And here I am a few hours later, eating vanilla ice-cream right from the tub as I transcribe the drama of the day from the safe distance of a few hours spent with George Clooney. And you know what?  I’m actually thinking how far I have come in this role of Person With Cancer.  It wasn’t so long ago that I would have staggered out of the doctor’s office in a state of shock and trauma, without the experience or presence of mind to stop the panic, dig deeper, and question further.  The doctor’s first comment would have immediately convinced me that the disease has spread to my bones – and who knows, maybe it has. But it’s just as likely that it hasn’t. Just as likely.

Those three words don’t get me any closer to knowing the facts, but they are enough for now.  And I know fear is still camped outside my front door, but I’m not sharing my ice-cream.

Advertisements

9 Comments

Filed under Living with Breast Cancer

9 responses to “Just As Likely

  1. Anita

    I’d like to say that it’s hard for anyone, even a doctor, to truly know how scary cancer is until they’ve experienced it themselves, and that maybe Dr. Sili is just a young person who thoughtlessly spoke before he thought, and that he’s learned from it, thanks to you.

    On the other hand, it’s just as likely he’s an asshole.

    Hang in there, and go grab some chocolate sauce.

    xo
    Anita

  2. Squiggysmom

    Ok….
    I, like a whole lot of others (that I’ve seen in the comments) stumbled onto your blog and have been following it regularly.
    Like everyone else, I love the way you put words together and the pictures you paint.
    I always have so many things I want to say in response to your blogs, but never do. Today is different tho.
    1 – Your blog should be required reading for those that work in the cancer-care corner of the health care world. I think that the insight you give to “the other side of the fence” would give many (Dr. Stupi….er… Dr. Sili) pause for thought.
    2 – Your blog should be required reading for Moms. The effort and love that you put into your Masterpiece’s world is nothing short of amazing.
    3. YOU ARE AMAZING! I know you know that, and I know that you are told that by SO MANY people in what seems a daily basis. So here is yet another stranger, tipping her hat to you, for being an incredible warrior, and incredible Masterpiece Guider (aka Mom!) and an inspiration to many.

    I hope that I never have to experience what you are going through, but if I did, to do it with the grace, the strength that you perservere with – THAT would be a gold medal indeed!

    Hats off to you bella! You are incredible!

  3. Julie Anderson

    Oh Leanne, I read some of your stuff 6 weeks ago and it took courage for me to read your fantastic writing again. CANDID! PROFOUND! INCREDIBLY EDUCATIONAL! I admire your courage. I love you, and your Mom for standing near you. I think about you often. Julie

  4. Gwen

    OMG! I am so sorry that you had such an awful interaction with Dr. SILI. You handled it so well, though, and showed such presence of mind! – more than the average person could/would, I think. Hopefully the doctor learned a lot from the experience, specifically to be certain of his facts before giving potentially distressing news to people. I hope you get a satisfactory X-ray report shortly. In the meantime, I hope the prescription has helped relieve the pain. A pulled muscle in the rib area can be very painful, and of course constant coughing keeps irritating the situation. Positive thoughts are winging your way, as always. And, BTW, I agree with other posters that your blog should be required reading for health care professionals, especially, but not limited to, those working in oncology.

  5. Scott

    ODE TO THE GIRL WITH APLOMB

    When dealing with a certain resident
    I would forgive the retort of “Please, get bent!”

    There is no question that Dr. SILI
    Needs a lesson in emotional touchy feely

    While I’m sure his duties he does not shirk
    But that comment of his…what a jerk!

    Yet once again, with style and class
    You didn’t say “Kiss my A**”

    Head held high you kept your calm
    I’m so glad you had your Mom

    If ever again you face such flack
    You’ve got a crew that has your back

    For anyone on your big fan team
    Will surely show up with the ice cream!

    As always, positive thoughts and good wishes!

  6. lisa

    Unbelievable. I guess this is how residents learn? Yowsers. You really have come so far Leanne. Wish I was there to share the ice cream with you. Giant hug. xoL

  7. Angelika

    Your post should be distributed to every resident and med school throughout the land! A reminder to all up and comers (and maybe even some seasoned vets!) that bedside manner is not just a course to pass in med school.

  8. Lisa B.

    Have been watching the Olympics and have been inspired by the strength and bravery of all the athletes. Then I read this. A Gold Medal, my beautiful friend.

  9. edwin

    You’re an inspiration to us all, Leanne. We’ll both get through this! One day we’ll both look back into our own respective battles while enjoying our vanilla ice cream!

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s